About The Collaborative

Who are we?

In one of the first initiatives of Australia’s National Digital Health Strategy – Safe, Seamless, and Secure, the Australian Digital Health Agency has partnered with eHealth NSW and the Sydney Children’s Hospitals Network to establish the landmark National Children’s Digital Health Collaborative.

This innovative program was set up in April 2017, bringing together Australia’s leading experts in children’s health to identify a number of strategic digital health projects for funding by the Australian Digital Health Agency (ADHA). This transformative, national partnership aims to improve the health and wellbeing of all Australian children and young people

The Collaborative includes representatives from all jurisdictions, and across all disciplines. It consists of over 400 individuals, including consumers, clinicians, health and social care providers, researchers and ICT industry partners.


Our vision

The National Children’s Digital Health Collaborative is committed to harnessing the power of technology to improve the health and wellbeing of children in Australia. Our vision is to develop digital health solutions that help:

  • Make Australia the best place in the world to raise healthy children, and to be raised

  • Ensure that all Australian children, irrespective of location, socioeconomic status, or cultural background, have the same opportunity to be healthy, safe and thriving

As part of this, the Collaborative is undertaking ground breaking work that forms the first step in supporting the creation of a more comprehensive digital health record for every child born in Australia, spanning from conception.


Why do we need the Collaborative?

Having easy access to more complete and up-to-date health information plays an essential role in ensuring a patient receives timely, safe and quality healthcare. However, many children and young people’s health related records are currently captured on multiple paper or electronic systems. These systems also vary between different public hospital networks across the states and territories. Paper records are easily forgotten or misplaced, and information is often required to be doubled-entered into both paper and digital systems.

Clinical impact

It can be difficult for healthcare providers to access all the information they need when a patient comes into a hospital or clinic in the absence of a comprehensive, up-to-date digital health record. The National Children’s Digital Health Collaborative is using digital technologies to help overcome these challenges and support healthcare providers in:

  • Enhancing the provision of evidence-based, safe and quality care

  • Increasing their work efficiency

  • Improving communication across different care settings (eg, hospitals and general practice)

  • Providing better coordinated and integrated care

  • Improving patient experiences

Community impact

The work of the National Children’s Digital Health Collaborative will have real-world impacts on the community. These include:

  • Empowering families to be partners in their children’s care with their healthcare providers

  • Providing families with easy access to and control of their health information

  • Enhancing the quality of children’s care through building a more comprehensive digital health record from conception

  • Helping to improve the overall health and wellbeing of all Australian children

  • Providing valuable research insight that may help drive future public health interventions

The National Children’s Digital Health Collaborative will also assess how future solutions developed can form a valuable repository of information to enable public research teams to better understand the health of children and identify ways to improve their wellbeing.


Our priority areas

The National Children’s Digital Health Collaborative has established four strategic initiatives to achieve its vision:

  1. Child Digital Health Record

  2. Digital Pregnancy Health Record

  3. Child Digital Health Checks

  4. Research into the Child Digital Health Record

These initiatives will be tested in what is known as a ‘proof-of-concept’ process. This will thoroughly evaluate the feasibility and functionality of the initiatives in real-world settings. The results from this process will provide valuable insight and help inform the potential for any future national rollouts.


Who is leading the Collaborative?

The Collaborative is led by NSW Health in partnership with the Australian Digital Health Agency and all States and Territories.

Click here to see who is leading the National Children's Digital Health Collaborative


Who are we?

In one of the first initiatives of Australia’s National Digital Health Strategy – Safe, Seamless, and Secure, the Australian Digital Health Agency has partnered with eHealth NSW and the Sydney Children’s Hospitals Network to establish the landmark National Children’s Digital Health Collaborative.

This innovative program was set up in April 2017, bringing together Australia’s leading experts in children’s health to identify a number of strategic digital health projects for funding by the Australian Digital Health Agency (ADHA). This transformative, national partnership aims to improve the health and wellbeing of all Australian children and young people

The Collaborative includes representatives from all jurisdictions, and across all disciplines. It consists of over 400 individuals, including consumers, clinicians, health and social care providers, researchers and ICT industry partners.


Our vision

The National Children’s Digital Health Collaborative is committed to harnessing the power of technology to improve the health and wellbeing of children in Australia. Our vision is to develop digital health solutions that help:

  • Make Australia the best place in the world to raise healthy children, and to be raised

  • Ensure that all Australian children, irrespective of location, socioeconomic status, or cultural background, have the same opportunity to be healthy, safe and thriving

As part of this, the Collaborative is undertaking ground breaking work that forms the first step in supporting the creation of a more comprehensive digital health record for every child born in Australia, spanning from conception.


Why do we need the Collaborative?

Having easy access to more complete and up-to-date health information plays an essential role in ensuring a patient receives timely, safe and quality healthcare. However, many children and young people’s health related records are currently captured on multiple paper or electronic systems. These systems also vary between different public hospital networks across the states and territories. Paper records are easily forgotten or misplaced, and information is often required to be doubled-entered into both paper and digital systems.

Clinical impact

It can be difficult for healthcare providers to access all the information they need when a patient comes into a hospital or clinic in the absence of a comprehensive, up-to-date digital health record. The National Children’s Digital Health Collaborative is using digital technologies to help overcome these challenges and support healthcare providers in:

  • Enhancing the provision of evidence-based, safe and quality care

  • Increasing their work efficiency

  • Improving communication across different care settings (eg, hospitals and general practice)

  • Providing better coordinated and integrated care

  • Improving patient experiences

Community impact

The work of the National Children’s Digital Health Collaborative will have real-world impacts on the community. These include:

  • Empowering families to be partners in their children’s care with their healthcare providers

  • Providing families with easy access to and control of their health information

  • Enhancing the quality of children’s care through building a more comprehensive digital health record from conception

  • Helping to improve the overall health and wellbeing of all Australian children

  • Providing valuable research insight that may help drive future public health interventions

The National Children’s Digital Health Collaborative will also assess how future solutions developed can form a valuable repository of information to enable public research teams to better understand the health of children and identify ways to improve their wellbeing.


Our priority areas

The National Children’s Digital Health Collaborative has established four strategic initiatives to achieve its vision:

  1. Child Digital Health Record

  2. Digital Pregnancy Health Record

  3. Child Digital Health Checks

  4. Research into the Child Digital Health Record

These initiatives will be tested in what is known as a ‘proof-of-concept’ process. This will thoroughly evaluate the feasibility and functionality of the initiatives in real-world settings. The results from this process will provide valuable insight and help inform the potential for any future national rollouts.


Who is leading the Collaborative?

The Collaborative is led by NSW Health in partnership with the Australian Digital Health Agency and all States and Territories.

Click here to see who is leading the National Children's Digital Health Collaborative